Wednesday, February 17, 2010

The girls had winter break from school this week, can't believe it's over already. Nothing really exciting happening, we are in town while dreaming of the Bahamas. We took a drive over to the south side this week to Montauk to see the seals. I tried to prepare the girls in case we didn't see any so it wasn't a complete let down. It was a short hike to get to the ocean, probably 20 minutes. Hannah only fell once so it was a good day. We saw seals immediately upon entering the beach. It was so cool. There weren't a lot, only 4, but so much fun to watch. Look at this cutie. It was pretty cold when we got down to the water, we stayed for about 30 minutes.

Hannah also had a sleepover last night (which is why I'm so tired today.) Four girls over, finally asleep about 12:15 in the morning, so not that bad. We made our own pizzas, made cut and tie pillows, played lots of hide-and-seek and hamster games, and watched a movie. It was a busy night, but so much laughing and so much fun.

So that was the fun stuff. Now for the other stuff. Hannah's mole biopsy came back as dysplastic nevus (atypical mole.) It could be something or it could be nothing. Back to research mode. What I know so far is that it could be a gene mutation (called Gorlin's syndrome) which causes both atypical moles that could eventually be cancer AND medulloblastoma, or it could be a secondary reaction as a result of the radiation she received, or it could be something unrelated. We have a clinic appointment in a couple weeks, and I'll discuss it with her oncologist. We also have a follow up appointment with her dermatologist-one more doctor to add to the mix-in six weeks to ensure she got the entire mole out and there is no repigmentation of the area.

If I had to make a guess, I would guess option #2, secondary issues resulting from the spinal radiation. The mole was in the field of radiation on her back. Will keep you informed as we progress through this one!

Enjoy your weekend,

Kim

1 comment:

Anne Salice said...

It was a nice break- being off and just catching up on things here! Kim- I would say you have graduated magna cum laude from Harvard Medical school- with all your knowledge at this point! Keep going forward my friend- one day at a time!