Monday, November 9, 2009

Happy Birthday to the best sister ever. Today is my sister Sue's birthday (29th I'm sure!) Love you!

Did I mention I tried to decrease Hannah's medicine again? I don't tell her when I attempt this because I don't want her to think about it, or to have a reaction that may not be absolutely true. One more try, one more fail, but I'll keep trying. Only 2 days after I decreased one of her anti-nausea meds, she started complaining of a stomach ache again and looked terrible in the morning. It was that same old look she used to have when she wouldn't eat anything in the morning. I immediately increased the med back up to it's original level, after a few choice words to myself, and just crossed my fingers that it would work right away. Last time we did this, we went back to the original dose and that didn't work. Her oncologist advised me then that sometimes just going back to the original dose doesn't work, and you have to double the medicine to get her back to a baseline. Trying to go one step forward and you end up going two steps back! That doesn't seem to be the case this time, when I increased them back, she quickly recovered. She seems to be fine again at this dose, I would just love for her not to have to be on these medicines for the rest of her life. I guess it's not the worst thing, but at some point I'm sure her insurance company won't want to cover these any longer.

I wanted to mention two other exciting things tonight.

The 2010 Team Unite Calendars are now available on Cafepress!! Show your support for our kids, and join us in the fight to CONQUER CHILDHOOD CANCER!!! Each page features Team Unite members. Also included within each month is a detailed description of one of the childhood cancers, including symptoms and statistics. The month of September features Childhood Cancer Awareness Month. All proceeds will go to The Henry Tucker Foundation, CureSearch, and The Jessica Catherine Randall Memorial Scholarship Fund. Please note that on our smaller calendar ("Team Unite Wall Calendar"), the informational text is a bit difficult to read from a distance. Please consider the larger size ("Team Unite Oversized Wall Calendar") if you feel this may be an issue. We have been a member of Team Unite for a couple years now, since it was created by our friends Heide and Michelle (both moms of children who are now deceased.) They are really doing an incredible job of raising awareness and supporting families of children with cancer. Hannah is pictured in the 2010 calendar in the month of January. _______________________________________________________________________________________ Also, we would like to announce an upcoming event hosted by our friend Amy Madjanani (Alec's mom, www.4theluvofalec.blogspot.com)

Kids Bowling For a Cause

Includes Unlimited Bowling & Shoes
Your tax exempt advance ticket purchase will be benefiting Guardian Brain Foundation a 501c3 non-profit organization

Chance to win a Marvel or Madagascar Bowling Ball, Sony MP3 Player and more

Join us Sunday, November 22nd at 10:00 am $30 per person

Smithtown Lanes
200 Landing Ave
Smithtown, NY 11787-1722
(631) 265-0121

Please contact Amy Mardjani (631)335-9889 for advance ticket information

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This sounds like great fun, and if you are local, please consider coming out to bowl! Hannah loves to bowl, and we plan to be there to help support Alec and his family as well as the Guardian Brain Foundation.

♥Kim