Tuesday, May 28, 2008

RELAY FOR LIFE UPDATE...108 LUMINARIAS!!!!

Uncle Mike is right, make it 108. I heard that Hannah is also getting another one tomorrow, so we'll let you know.

Well I spoke too soon. Hannah woke up this morning, and on our way into physical therapy before school she announced that her feet hurt and she was limping. So, just like that it's back. It's not as bad before, but her left foot is hurting. We met today with the neurologist at Schneider's who really didn't have any concrete ideas. This is just a difficult issue to diagnose (after a brain tumor you would think anything is easier.) She did say that Hannah should continue with therapy, perhaps that was what gave her the 2 week reprive from the pain. She doesn't think it's neuropathy and did not recommend any medication, so that's good. She did point out though that Hannah still has nystagmus (her eyes jump at the far ends of her peripheral vision.) This surprised me, since I thought that was gone since Boston, but it was quite obvious when they showed me. It doesn't affect her vision or the function of her eyes, and is a product of the surgery. Nothing needs to be done about.





I wanted to share a few individuals luminarias with you that the girls have completed. I really like them all, and we will be sending everyone who ordered a bag a picture of their decorated bag. I'll share more individual bags here too, can only get so many pictures on at one time.I can't wait to see them all lit up around the track.

The bags with Hannah's name on them Hannah decorated from Grandma and Grandpa. The bags with all the little pictures on it are all of Hannah's favorite things (isn't that cute Karenann?), the Boston Bags are from our favorite hat man in Boston, there is Colby with her "Cancer Fears Me" bag, and the bags for Coleman and Hannah that Hannah also made (from the Reyes family.) Just wait until you see the ones tomorrow, very interesting.

xoxo Kim