Friday, May 16, 2008

RELAY FOR LIFE UPDATE...69 LUMINARIAS!!!!


Yes, that number is correct! When I got the mail today there were so many other envelopes with orders for luminarias that I hadn't yet been notified of...now THAT'S fun!!! Thank you everyone!! There is still plenty of time left to order one, we are almost to that 100 mark Christine!!



Well our pool now is truly a pool! They finished today around lunchtime, everything went smoothly. It looks awesome...and BIG! They had to dig out the yard quite a bit to get it level, so our above ground pool is almost like an inground pool on the one side. I wonder who will be the first one in...Hannah or Tod? I can see him running full speed and jumping in. We need to keep the dogs out of the pool to protect the liner, so hopefully that doesn't happen.

I noticed when they delivered the pool that the box with the liner inside read "Coral Sea Liner" since I knew we had ordered "Indigo liner" I was hoping Hannah wouldn't notice when she got home from school (sorry Amy). She took one step out of the backdoor and said "that liner is ugly, it's not the right one." So much for that. After a bit of quick thinking and talking and a few tears, she was ok with it.

The pool now has about 2 inches of water in it. It's raining pretty hard, so I guess that adds to it too! My friend Leslie had arranged for the fire department to come over with a tanker truck and fill the pool, they we due to come here last night. Well, since it took 9hours to dig the hole, that didn't happen. As it turned out, we needed to fill it very slowly today, due to cold weather, to help slowly stretch the liner. Thanks Leslie, that was a great set up, now go have that BABY!

On a sad note, another child lost his battle with cancer today. Little John Eric died this morning. He had neuroblastoma, similar but not exactly the same as Hannah's medulloblastoma. He was only 2 years old. Just not right. Please keep John Eric and his family in your prayers.

Hannah and I travel to Boston on Sunday. On Monday morning, she will undergo a 4 hour neuropsychology test. We wanted to have her tested with the same psychologist that performed the first exam, so they exactly comparable from year to year. This test will determine Hannah's cognitive, motor, behavioral, language, and executive functioning. The test will provide valuable data that the school can use to help Hannah and make any accomodations she might need.

After the test, we plan to visit Spaulding Rehab center and the Proton Center, where we spent so much time last year, and became friends with many of the people there. We can't wait to visit, that will be the fun part of the trip!

Have a good weekend everyone,

xoxo Kim

5 comments:

Anonymous said...

What a beautiful pool!!!!!!!!!!!What a great summer you will have!!

Much love,
The Reyes Family

Anonymous said...

We are sooo excited for you all! Judging by the picture of Tod by the door, you are really going to have to work hard to keep him out of the pool!!!
Enjoy!!
Mary & Bailey

Anonymous said...

Hannah good luck in Boston, I know how happy and proud all of your friends you have up there are going to be when they see how wonderful you have done, how far you have come since you were with them last! That is a real treat to have one of your "clients" come back and show themselves off- it will make them all feel so good!! So enjoy New England! The North Fork will miss you for only a couple days!!

P.S.That pool looks great- tell Mom you want some really great floats! So you can all lounge around!! You deserve that!
Love and prayers, Anne Salice

Anonymous said...

Hannah,
Your pool is AWESOME! I hope you have a pool party every weekend! Have fun girl!

Bonnie and Gina
www.caringbridge.org/visit/ginamulieri

Anonymous said...

Holy Cow Hannah!!! What a great pool! You are gonna be a water Diva this summer! That is way bigger than my pool, we're coming over! I hope you have the best time in that humdinger this summer!!
I can't wait to see you in it, splish splashing away.

Have a good week.. good luck with the neuropsych stuff.

Hugs.. Amy.. kasey's mom